Quality of life of parents and siblings of children with cochlear implants

Research output: Contribution to journalArticle

Abstract

Objectives: This study examined the quality of life (QoL) of the parents and siblings of hearing-impaired children with cochlear implants (CIs). Design: This is a cross-sectional, questionnaire-based study. The questionnaire consists of three sub-domains - interaction, emotional well-being and support for the hearing-impaired child and the overall QoL – and two open-ended questions for participants to provide comments and suggestions to enhance their family's QoL. A total of 63 questionnaires were e-mailed or mailed to families who met the inclusion criteria. Setting: The study was conducted under the Center for Rehabilitation & Special Needs, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur. Participants: A total of 79 parents and 23 siblings from 44 families of children with CI participated in this study. Main outcome measures: The mean score for each of the sub-domain and the overall QoL for both subject groups were computed. The answers for the open-ended questions were listed and organized into themes. Results: There were significant correlations between the overall QoL score and each of the test domains for the parents’ group (p < 0.01). For the siblings’ group, only the interaction and support domains were significant. Interaction was the main sub-domain affecting the parents’ QoL but for siblings, this could not be determined. A total of 60% of the pooled comments were classified as ‘concerns’. As for the suggestions, 38.7% requested some form of support, mainly financial (41.7%). Conclusions: Families with hearing impaired children with CI have numerous concerns that need to be addressed, even though, on average, they were satisfied with their overall QoL.

Original languageEnglish
Pages (from-to)17-21
Number of pages5
JournalJournal of Otology
Volume14
Issue number1
DOIs
Publication statusPublished - 1 Mar 2019

Fingerprint

Cochlear Implants
Siblings
Parents
Quality of Life
Hearing
Financial Support
Rehabilitation Centers
Malaysia
Outcome Assessment (Health Care)
Health
Surveys and Questionnaires

Keywords

  • Cochlear implants
  • Families
  • Parents
  • Quality of life (QoL)
  • Siblings

ASJC Scopus subject areas

  • Otorhinolaryngology

Cite this

Quality of life of parents and siblings of children with cochlear implants. / Umat, Cila; Abdul Wahat, Nor Haniza; Che Ross, Sakinah; Goh, Bee See.

In: Journal of Otology, Vol. 14, No. 1, 01.03.2019, p. 17-21.

Research output: Contribution to journalArticle

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