Projecting social support needs of informal caregivers in Malaysia

Siti Hajar Abu Bakar, Richard Weatherley, Noralina Omar, Fatimah Abdullah, Nur Saadah Mohamad Aun

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

This article presents the findings of a self-report study of the consequences of being an informal caregiver in Malaysia. The aim of this exploratory study was to examine Malaysian efforts in assisting informal caregivers, based on an analysis of the issues and concerns raised by the caregivers themselves. Data were obtained from a cross-sectional survey of informal caregivers in 2009. This sample comprised parents, spouses and/or adult siblings, and adult children, caring for their children, spouses or siblings and parents who were chronically ill and/or had a disability. Of 300 prospective participants, only 175 could be located (58%), but all those contacted agreed to participate. Respondents were randomly selected and interviewed using a structured questionnaire to identify the emotional, financial, social and physical issues consequent upon being a caregiver. Most respondents reported that their care-giving responsibilities had impacted their emotional, financial, social and/or physical well-being. Inadequate and/or uncertain income was by far the greatest concern followed in descending order by social, physical and emotional consequences. The one-way analysis of variance showed significant differences among the three categories of caregivers with respect to physical and emotional consequences. The findings show that care-giving has detrimental effects on the lives of informal caregivers, and that they are in significant need of social support to help them deal with care-giving tasks and responsibilities. Based on the findings, an integrated social support programme is proposed, tailored to the needs of informal caregivers.

Original languageEnglish
Pages (from-to)144-154
Number of pages11
JournalHealth and Social Care in the Community
Volume22
Issue number2
DOIs
Publication statusPublished - Mar 2014

Fingerprint

Malaysia
Social Support
Caregivers
caregiver
social support
Spouses
spouse
Siblings
parents
Parents
chronically ill
responsibility
analysis of variance
Self Report
Analysis of Variance
Chronic Disease
Cross-Sectional Studies
well-being
disability
income

Keywords

  • Chronically ill
  • Family caregivers
  • Informal caregivers
  • Malaysia
  • Social supports

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Health Policy
  • Social Sciences (miscellaneous)
  • Sociology and Political Science

Cite this

Projecting social support needs of informal caregivers in Malaysia. / Abu Bakar, Siti Hajar; Weatherley, Richard; Omar, Noralina; Abdullah, Fatimah; Mohamad Aun, Nur Saadah.

In: Health and Social Care in the Community, Vol. 22, No. 2, 03.2014, p. 144-154.

Research output: Contribution to journalArticle

Abu Bakar, Siti Hajar ; Weatherley, Richard ; Omar, Noralina ; Abdullah, Fatimah ; Mohamad Aun, Nur Saadah. / Projecting social support needs of informal caregivers in Malaysia. In: Health and Social Care in the Community. 2014 ; Vol. 22, No. 2. pp. 144-154.
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