Parent-reported pain in non-verbal children and adolescents with cerebral palsy

Subhashini Jayanath, Lai Choo Ong, Mary Joseph Marret, Aishah Ahmad Fauzi

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Aim: This cross-sectional study aimed to determine the prevalence, frequency, and intensity of parent-reported pain among non-verbal children with cerebral palsy (CP) and explore associations with medical, demographic, and parental psychosocial factors. Method: Participants were parents of non-verbal outpatients (aged 2-20y) with CP at University of Malaya Medical Centre, Kuala Lumpur and two community centres. Parents answered the Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire and a pro forma regarding parent-reported frequency and intensity of pain during the preceding 4 weeks. Parental psychosocial well-being was assessed via the Depression, Anxiety and Stress Scale and Multidimensional Scale of Perceived Social Support. Results: The response rate was 94%; 104 children (54 males, 50 females) were studied. The majority (51%) were in Gross Motor Function Classification System level V and 65% had spastic quadriplegia. Parents reported pain in 65%, intense pain in 17%, and daily pain in 28%. Intense and frequent pain was reported during physiotherapy. More intense pain was reported in older children (p=0.016) and those with spastic quadriplegia (p=0.020). Interpretation: Caregivers of non-verbal children with CP report a high frequency of pain. Pain intensity is associated with patient factors but not parental psychosocial factors.

Original languageEnglish
Pages (from-to)395-401
Number of pages7
JournalDevelopmental Medicine and Child Neurology
Volume58
Issue number4
DOIs
Publication statusPublished - 1 Apr 2016
Externally publishedYes

Fingerprint

Cerebral Palsy
Pain
Quadriplegia
Parents
Caregivers
Psychology
Malaysia
Social Support
Outpatients
Anxiety
Cross-Sectional Studies
Demography
Depression

ASJC Scopus subject areas

  • Clinical Neurology
  • Pediatrics, Perinatology, and Child Health
  • Developmental Neuroscience

Cite this

Parent-reported pain in non-verbal children and adolescents with cerebral palsy. / Jayanath, Subhashini; Ong, Lai Choo; Marret, Mary Joseph; Fauzi, Aishah Ahmad.

In: Developmental Medicine and Child Neurology, Vol. 58, No. 4, 01.04.2016, p. 395-401.

Research output: Contribution to journalArticle

Jayanath, Subhashini ; Ong, Lai Choo ; Marret, Mary Joseph ; Fauzi, Aishah Ahmad. / Parent-reported pain in non-verbal children and adolescents with cerebral palsy. In: Developmental Medicine and Child Neurology. 2016 ; Vol. 58, No. 4. pp. 395-401.
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