Health and quality of life among the caregivers of children with disabilities: A review of literature

Siti Nor Ismalina Isa, Ismarulyusda Ishak, Azriani Ab Rahman, Nur Zakiah Mohd Saat, Normah Che Din, Syarif Husin Lubis, Muhammad Faiz Mohd Ismail

Research output: Contribution to journalReview article

7 Citations (Scopus)

Abstract

Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009–2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers’ health and quality of life include the caregivers’ sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers’ adaptations to their children's disabilities.

Original languageEnglish
Pages (from-to)71-77
Number of pages7
JournalAsian Journal of Psychiatry
Volume23
DOIs
Publication statusPublished - 1 Oct 2016

Fingerprint

Disabled Children
Caregivers
Quality of Life
Health
Peer Review
Self Efficacy
Self Concept
MEDLINE
Social Support
Databases

Keywords

  • Caregivers
  • Children with disabilities
  • Factors
  • Psychological health
  • Quality of life
  • Stress

ASJC Scopus subject areas

  • Psychiatry and Mental health
  • Psychology(all)

Cite this

Health and quality of life among the caregivers of children with disabilities : A review of literature. / Isa, Siti Nor Ismalina; Ishak, Ismarulyusda; Ab Rahman, Azriani; Mohd Saat, Nur Zakiah; Che Din, Normah; Lubis, Syarif Husin; Mohd Ismail, Muhammad Faiz.

In: Asian Journal of Psychiatry, Vol. 23, 01.10.2016, p. 71-77.

Research output: Contribution to journalReview article

Isa, Siti Nor Ismalina ; Ishak, Ismarulyusda ; Ab Rahman, Azriani ; Mohd Saat, Nur Zakiah ; Che Din, Normah ; Lubis, Syarif Husin ; Mohd Ismail, Muhammad Faiz. / Health and quality of life among the caregivers of children with disabilities : A review of literature. In: Asian Journal of Psychiatry. 2016 ; Vol. 23. pp. 71-77.
@article{9d271f793a454dfd8bd9dd0e79e3a741,
title = "Health and quality of life among the caregivers of children with disabilities: A review of literature",
abstract = "Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009–2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers’ health and quality of life include the caregivers’ sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers’ adaptations to their children's disabilities.",
keywords = "Caregivers, Children with disabilities, Factors, Psychological health, Quality of life, Stress",
author = "Isa, {Siti Nor Ismalina} and Ismarulyusda Ishak and {Ab Rahman}, Azriani and {Mohd Saat}, {Nur Zakiah} and {Che Din}, Normah and Lubis, {Syarif Husin} and {Mohd Ismail}, {Muhammad Faiz}",
year = "2016",
month = "10",
day = "1",
doi = "10.1016/j.ajp.2016.07.007",
language = "English",
volume = "23",
pages = "71--77",
journal = "Asian Journal of Psychiatry",
issn = "1876-2018",
publisher = "Elsevier",

}

TY - JOUR

T1 - Health and quality of life among the caregivers of children with disabilities

T2 - A review of literature

AU - Isa, Siti Nor Ismalina

AU - Ishak, Ismarulyusda

AU - Ab Rahman, Azriani

AU - Mohd Saat, Nur Zakiah

AU - Che Din, Normah

AU - Lubis, Syarif Husin

AU - Mohd Ismail, Muhammad Faiz

PY - 2016/10/1

Y1 - 2016/10/1

N2 - Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009–2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers’ health and quality of life include the caregivers’ sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers’ adaptations to their children's disabilities.

AB - Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009–2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers’ health and quality of life include the caregivers’ sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers’ adaptations to their children's disabilities.

KW - Caregivers

KW - Children with disabilities

KW - Factors

KW - Psychological health

KW - Quality of life

KW - Stress

UR - http://www.scopus.com/inward/record.url?scp=84979740916&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84979740916&partnerID=8YFLogxK

U2 - 10.1016/j.ajp.2016.07.007

DO - 10.1016/j.ajp.2016.07.007

M3 - Review article

C2 - 27969083

AN - SCOPUS:84979740916

VL - 23

SP - 71

EP - 77

JO - Asian Journal of Psychiatry

JF - Asian Journal of Psychiatry

SN - 1876-2018

ER -