Challenges faced by parents of children with autism spectrum disorder in Malaysia

Chu Shin Ying, Siti Nor Syamim Aqila binti Mohd Normal, Grace E. McConnell, Joo Siang Tan, Susheel Kaur Dhillon Joginder Singh

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.

Original languageEnglish
JournalSpeech, Language and Hearing
DOIs
Publication statusAccepted/In press - 1 Jan 2018

Fingerprint

Malaysia
autism
parents
Parents
Speech Therapy
speech therapy
Interviews
interview
Language Therapy
Autism Spectrum Disorder
Self-Help Groups
language
coping
Language
lack

Keywords

  • challenges
  • Children with ASD
  • interview
  • parents
  • speech therapy

ASJC Scopus subject areas

  • Otorhinolaryngology
  • Linguistics and Language
  • Speech and Hearing

Cite this

Challenges faced by parents of children with autism spectrum disorder in Malaysia. / Shin Ying, Chu; Mohd Normal, Siti Nor Syamim Aqila binti; McConnell, Grace E.; Tan, Joo Siang; Joginder Singh, Susheel Kaur Dhillon.

In: Speech, Language and Hearing, 01.01.2018.

Research output: Contribution to journalArticle

@article{b96edb4ff941467fa9a916eebf8d80a7,
title = "Challenges faced by parents of children with autism spectrum disorder in Malaysia",
abstract = "Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.",
keywords = "challenges, Children with ASD, interview, parents, speech therapy",
author = "{Shin Ying}, Chu and {Mohd Normal}, {Siti Nor Syamim Aqila binti} and McConnell, {Grace E.} and Tan, {Joo Siang} and {Joginder Singh}, {Susheel Kaur Dhillon}",
year = "2018",
month = "1",
day = "1",
doi = "10.1080/2050571X.2018.1548678",
language = "English",
journal = "Speech, Language and Hearing",
issn = "2050-5728",
publisher = "Taylor and Francis Ltd.",

}

TY - JOUR

T1 - Challenges faced by parents of children with autism spectrum disorder in Malaysia

AU - Shin Ying, Chu

AU - Mohd Normal, Siti Nor Syamim Aqila binti

AU - McConnell, Grace E.

AU - Tan, Joo Siang

AU - Joginder Singh, Susheel Kaur Dhillon

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.

AB - Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.

KW - challenges

KW - Children with ASD

KW - interview

KW - parents

KW - speech therapy

UR - http://www.scopus.com/inward/record.url?scp=85057580954&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85057580954&partnerID=8YFLogxK

U2 - 10.1080/2050571X.2018.1548678

DO - 10.1080/2050571X.2018.1548678

M3 - Article

AN - SCOPUS:85057580954

JO - Speech, Language and Hearing

JF - Speech, Language and Hearing

SN - 2050-5728

ER -