Burden of care among caregivers of patients with Parkinson disease: A cross-sectional study

Rosdinom Razali, Fazli Ahmad, Fairuz Nazri Abdul Rahman, Marhani Midin, Hatta Sidi

Research output: Contribution to journalArticle

27 Citations (Scopus)

Abstract

Objective: Parkinson disease (PD) affects the lives of both the individuals and their family members. This study aims at investigating for clinical as well as socio-demographic factors associated with the perception of burden among the caregivers of individuals with PD in Malaysia. Methods: This is a descriptive, cross-sectional study on PD patients and their caregivers who attended the neurology clinics of 2 tertiary hospitals in Kuala Lumpur. Socio-demographic and clinical data of the patients were obtained, including caregivers' perception of burden using the Caregiver's Burden Scale (CBS). Results: The patients' mean age was 62.12 ± 9.69 years, almost half of them were in stage 2 of their illness, had developed PD at the age of 50-69 and had duration of illness of less than 5 years. The caregivers were mostly females and a third of them were wives. Factors which were significantly associated with increased caregiver burden were patients' advancing age, later stage of illness and those having longer duration of caring. Caregivers' perceived burden was related to their race gender, social status, kinship with patient or duration of care-giving. Conclusion: Burden of care is significantly more in PD patients of advanced age and stage of illness.

Original languageEnglish
Pages (from-to)639-643
Number of pages5
JournalClinical Neurology and Neurosurgery
Volume113
Issue number8
DOIs
Publication statusPublished - Oct 2011

Fingerprint

Caregivers
Parkinson Disease
Cross-Sectional Studies
Demography
Malaysia
Neurology
Spouses
Tertiary Care Centers

Keywords

  • Burden of care
  • Caregiver's Burden Scale (CBS)
  • Caregivers
  • Parkinson disease

ASJC Scopus subject areas

  • Clinical Neurology
  • Surgery

Cite this

Burden of care among caregivers of patients with Parkinson disease : A cross-sectional study. / Razali, Rosdinom; Ahmad, Fazli; Abdul Rahman, Fairuz Nazri; Midin, Marhani; Sidi, Hatta.

In: Clinical Neurology and Neurosurgery, Vol. 113, No. 8, 10.2011, p. 639-643.

Research output: Contribution to journalArticle

@article{91b82fb3d87047ffa80255fec366f502,
title = "Burden of care among caregivers of patients with Parkinson disease: A cross-sectional study",
abstract = "Objective: Parkinson disease (PD) affects the lives of both the individuals and their family members. This study aims at investigating for clinical as well as socio-demographic factors associated with the perception of burden among the caregivers of individuals with PD in Malaysia. Methods: This is a descriptive, cross-sectional study on PD patients and their caregivers who attended the neurology clinics of 2 tertiary hospitals in Kuala Lumpur. Socio-demographic and clinical data of the patients were obtained, including caregivers' perception of burden using the Caregiver's Burden Scale (CBS). Results: The patients' mean age was 62.12 ± 9.69 years, almost half of them were in stage 2 of their illness, had developed PD at the age of 50-69 and had duration of illness of less than 5 years. The caregivers were mostly females and a third of them were wives. Factors which were significantly associated with increased caregiver burden were patients' advancing age, later stage of illness and those having longer duration of caring. Caregivers' perceived burden was related to their race gender, social status, kinship with patient or duration of care-giving. Conclusion: Burden of care is significantly more in PD patients of advanced age and stage of illness.",
keywords = "Burden of care, Caregiver's Burden Scale (CBS), Caregivers, Parkinson disease",
author = "Rosdinom Razali and Fazli Ahmad and {Abdul Rahman}, {Fairuz Nazri} and Marhani Midin and Hatta Sidi",
year = "2011",
month = "10",
doi = "10.1016/j.clineuro.2011.05.008",
language = "English",
volume = "113",
pages = "639--643",
journal = "Clinical Neurology and Neurosurgery",
issn = "0303-8467",
publisher = "Elsevier",
number = "8",

}

TY - JOUR

T1 - Burden of care among caregivers of patients with Parkinson disease

T2 - A cross-sectional study

AU - Razali, Rosdinom

AU - Ahmad, Fazli

AU - Abdul Rahman, Fairuz Nazri

AU - Midin, Marhani

AU - Sidi, Hatta

PY - 2011/10

Y1 - 2011/10

N2 - Objective: Parkinson disease (PD) affects the lives of both the individuals and their family members. This study aims at investigating for clinical as well as socio-demographic factors associated with the perception of burden among the caregivers of individuals with PD in Malaysia. Methods: This is a descriptive, cross-sectional study on PD patients and their caregivers who attended the neurology clinics of 2 tertiary hospitals in Kuala Lumpur. Socio-demographic and clinical data of the patients were obtained, including caregivers' perception of burden using the Caregiver's Burden Scale (CBS). Results: The patients' mean age was 62.12 ± 9.69 years, almost half of them were in stage 2 of their illness, had developed PD at the age of 50-69 and had duration of illness of less than 5 years. The caregivers were mostly females and a third of them were wives. Factors which were significantly associated with increased caregiver burden were patients' advancing age, later stage of illness and those having longer duration of caring. Caregivers' perceived burden was related to their race gender, social status, kinship with patient or duration of care-giving. Conclusion: Burden of care is significantly more in PD patients of advanced age and stage of illness.

AB - Objective: Parkinson disease (PD) affects the lives of both the individuals and their family members. This study aims at investigating for clinical as well as socio-demographic factors associated with the perception of burden among the caregivers of individuals with PD in Malaysia. Methods: This is a descriptive, cross-sectional study on PD patients and their caregivers who attended the neurology clinics of 2 tertiary hospitals in Kuala Lumpur. Socio-demographic and clinical data of the patients were obtained, including caregivers' perception of burden using the Caregiver's Burden Scale (CBS). Results: The patients' mean age was 62.12 ± 9.69 years, almost half of them were in stage 2 of their illness, had developed PD at the age of 50-69 and had duration of illness of less than 5 years. The caregivers were mostly females and a third of them were wives. Factors which were significantly associated with increased caregiver burden were patients' advancing age, later stage of illness and those having longer duration of caring. Caregivers' perceived burden was related to their race gender, social status, kinship with patient or duration of care-giving. Conclusion: Burden of care is significantly more in PD patients of advanced age and stage of illness.

KW - Burden of care

KW - Caregiver's Burden Scale (CBS)

KW - Caregivers

KW - Parkinson disease

UR - http://www.scopus.com/inward/record.url?scp=80052165062&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=80052165062&partnerID=8YFLogxK

U2 - 10.1016/j.clineuro.2011.05.008

DO - 10.1016/j.clineuro.2011.05.008

M3 - Article

C2 - 21684679

AN - SCOPUS:80052165062

VL - 113

SP - 639

EP - 643

JO - Clinical Neurology and Neurosurgery

JF - Clinical Neurology and Neurosurgery

SN - 0303-8467

IS - 8

ER -